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Family engagement in Rehabilitation care for stroke patients - Coggle…

- - - - Carers as daily assistance rather than professional roles
      - Carer lack responsibility and affection investment
      - Carers lack competency lead to caregiver untrust
- - - - various source of information, including HCP
      - Using “folk prescription” on their own
      - Use a cloth strip to help the patient to walk
      - Did not inhale the smoke into the lungs
      - Difficulty in judging the reliability of online resource
      - what learn to care
        
        Difficulty to coping the low patient adherence with rehabilitation
        
        Difficulty in identifying the needs of patients
        
        Difficulty in understanding and coping with emotional disorders of patients
      - Caregivers prior acquire knowledge from AI interactive platforms
      - Internet technology empowers information support for caregivers
      - Rehabilitation aids boost caregiver confidence
      - Early-stage engagement is challenging
    - - Caregiver physical burden
    - - caregivers as medical agents
      - Role of caregivers as advocator and coordinators
      - Role of caregivers as communication bridge
      - Role of caregivers as substitute decision-maker
    - - Caregiver acquire professional guidance from healthcare providers
        
        Engagement concept of following the healthcare providers' decisions to perform tasks
        
        Caregivers are concerned about secondary harm to the patient
        
        Role of caregiver as psychological supporter
  - - - Limited coverage of rehabilitation costs by medical insurance
        
        Medical decision conflicts caused by frequent referrals
        
        Difficulty in transferring patients to lower-level facilities
      - Unaffordable cost of a carer
      - Limitations of community rehabilitation
        
        is this affect to transportation to hospital?
        
        Limitation support provide in the home setting
        
        Healthcare disparities between urban and rural areas
        
        Caregiver decision-making difficulty
      - Limitations of support within the family
      - Caregiver economic burden
    - - Dysfunctional family systems impede patient-caregiver communication
      - Family-internal medical decision-making conflicts
      - Implicit allocation of care responsibilities
      - Difficulty in building trust relationship with patients to provide care
      - Difficulty to coping the low patient adherence with rehabilitation
      - Caregiver emotional burden
      - Intergenerational values between caregivers and patients
      - Parent-dominated authoritative family relationship model
    - - Communication conflict in patient prognostics between caregivers and healthcare providers
      - Potential power inequalities in doctor-patient
        
        Unmet needs for professional expertise to improve competency
      - Disagreement among healthcare providers causes caregiver dilemma
      - Conflicts between the rehabilitation service provision and rehabilitation needs
      - Conflicts of perception and goals between doctors and caregivers
      - Insufficient communication and explanation by healthcare providers
        
        Received guidance is too superficial for practical application
        
        Unmet needs of information and technology support
      - Insufficient humanized care in medical service
        
        invisible caregiver - being invisible
      - Medical ethics and practical dilemmas
    - - Difficulty in balance life and caregiver role
  - - - Mutual understanding and support between patients and caregivers
      - Mutual understanding between healthhcare providers and caregivers
      - Mutual understanding between caregivers and carers
      - Rapport patient-caregiver relationship promote patient adherence
      - Concept of collective wisdom and effort from all parties
      - Unmet needs for psychological support
        
        Later, I also learned a bit about it. Some patients may take a very long time to recover, possibly five, six, seven, or eight years. Stroke recovery is a very long process, and enduring it over such a long period can really require psychological support for family caregivers. Moreover, family members really need to be given sufficient care and love. Of course, I think that this kind of perseverance is what allows one to keep going. I also feel that many people don’t actually persevere very well. Many still end up giving up or something like that (P7)
      - Role of caregiver as economic supporter
      - Life experience that prioritizes collective interests over individual interests
    - - Give up two rehabilitation therapy at random
      - Caregiver decision-making is more humane and warm
      - Concept of avoiding overcare to maintain patient independence
      - Concept of rehabilitation individualization principle
      - Engagement concept of co-managing patients through communication and collaboration
      - personal growth?
      - Psychological adaption from chaos to order