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map the project, EU (Naional schemes for digital ID, EIDAS, AI Act, LAw…
map the project
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DIGITAL ID
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infrastructural change as opportunity to study how values, access issues, how state defines priorities, how this is in flux
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data infrastructure tend to be or are perceived as opaque > in moment of change it is an opportunity to capture
why does it matter for DATAGOV: regulatory data infrastructure as regulators of behavior we saying behavior (not just psychologized individual behavior) but how people engage with the state > direct impact on behaviour (e.g., how do municipal agents consider request for identification change? how do private actors see their role? how this new digital ID: citizenship > how citizens feel they can carry out request for truthful identification (see example of more parents) and see pathways to truthful identification; inequality > minorities is mostly concerned (see trans and nonbinary individuals); sovereign > how do we even define sovereignty, and how does it shift? Brasil prides itself on federal systems; how does it change when municipal actors have less authority on how citizens are identified? 210 million Brasilian, 5 years
experiment with the unknown (e.g., it is easier to deal with the federal level than municipality)
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Qs: cases approached as a matter of value; RDI have impact on expectations; how these relationships and expectations are impacted by data infrastructure?
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truthful state identification = accurately representing my identification. HOW positive or harmful impact takes place and why?
BIOMETRICS
- recognition of individual based on unique biological or behavioural features
- unique identification across datasets (interoperability, capitalistic logic of data..)
- why does it matter to DATAGOV: 1) sovereignty (more data = power, infrastructural power; capitalist logics of data), 2) citizenship (interoperability potential, loss of control/who owns the data?; data doesn't move but data is copied); 3) inequality (standardization, bias, discrmination, digital realities become more powerful > pushes decision-making into data)
- Qs: what is extreme to us nowadays? (1984, Black Mirror); how easy would biometrics make committment a genocide? How to make sure this never happens? how to make data more democratic?
HEALTH TECH
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connection to DATAGOV: governace and accountability; data sovereignty; privacy and risk; consent & exclusion; citizenship & inequality; conceptual linkage
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care robots, wearable tech, diabetis tech, ....?
SOVEREIGNITY
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- sovereignty as relational and negotiated capacity
- "assemblage thinking" > assemblages of sovereignty through and over data
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- being relational as researchers > even journals as part of assemblages
- important to give somethign back and inform public debate
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INEQUALITY
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- exclusion, bias and error, discrimination
- strive for social justice rather than normative ideals of fairness and ethics (D’Ignazio & Klein, 2020)
- digital health strategy in Brasil
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- Who is excluded from the implementation of governance by data infrastructure? With what consequences? e.g. territorial inequalities, lack of access to internet connection
- environmental destruction, data centers...?
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afternoon session
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Focus on geographies, keeping in mind that it is a simplified representation; collectively start populating regions, anything that comes to mind in relation to case studies and WPs.
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National ID schemes: DigiID, SPID, BankID
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La Meva Salut, digital health app, Catalunya, Spain
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Eu for Health Program, funding scheme to support digital health infrastructure
Digital Health Strategy, Brazil
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DPDPA Digital Personal Data Protection Act, transnational
Beltan Road initiative, t
