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Rural Focus Group Themes, Theme 1: Rural Lifestyle, Theme 2: Rural…

- - - - Reliance of other people driving them
    - - Not driving at night
    - - However, doesn't always go to where you want to go or at specific times
- - - - Rural privacy and pride
        
        Isolated people, suffering in silence
        
        Dementia stigma in small towns
        
        Dementia ignorance
- - - - Limited dementia knowledge
        
        Early onset dementia onset on the rise
        
        Educate the younger generations
      - Adjusting dementia information to rural communities
        
        Dementia like another disease
        
        Relating MRF
        
        Lower dementia risk --> "don't get old"
      - Fallout with dementia/health organisations
        
        Dementia funding
- - - - Making dementia digestible
- - - - Dementia testing/diagnosis
      - Dementia misdiagnosis: anxiety > dementia
- - - - Most don't see how MRF relate to dementia
    - - Put it on the same level of information outreach
    - - Fallout with these organisations
        
        Limited funding for programs
- - - - Trust
      - Knowledge
      - Expertise in the topic
      - Made dementia understandable and real
        
        Case studies
- - - - Delays in health care
        
        Higher rates of dementia in rural areas
        
        Fear of being alone with no support
- - - - But of course, you can buy it online but that's not my thing, I haven't got a credit card I haven't got a mobile phone, so there you go.
- - - - Hard to get people
        
        We are trying to find out what we can we offer that remedy that, that the people would want to get out and about and do it
        
        People need to socialise to be out and about, for a healthy outlook. And we're trying to offer them those day trips. And I'm concerned they're dropping off and we don't know what to offer, is what we offer not good enough? I don't know.
    - - When you mentioned, social, low social engagement, we've been talking about last month, we've got the local community bus, which we already go, were taking people on tours now, whether we're running out of places of interest, or exciting places, or I mean, one state, we went to Moring Point and Cut places, we have two lots of people to fill up truck. We could go there twice in one month. Now we're having trouble to find somewhere to go or fill the van up. And you're pushing to get the numbers now, with the people aren't looking at coming out and doing it, you can't get them out, you got to push them a bit more and ring them and say "Right, you want to come whale watching." I thought whale watching would be a big seller. We've got nine out of a bus load of 10 people to go. Nine out of 10 people went, now, I thought that we could have done two trips out of that one.
      - Same thing with Rosie's Bingo. The numbers are dropping on your bingo. It started off pretty good. You go to other places around the place, to the coast, and we were down in Martin, Mirabella yesterday, they had bingo on a Sunday morning, people everywhere. They all love their bingo, but the interest is dropping off.
    - - Kilki-Van
        
        Doesn't go at the times or places you need
      - Fortnightly GP/Nurse visits
        
        Doesn't come at the times you need
        
        General care
      - Libraries - special sessions
        
        Limited capacity for health education
- - - - Quote of lady saying sewing grouped helped her more than the dr.
- - - - Especially men
- - - - dementia stigma
        
        rural privacy and pride
        
        isolated people, suffering in silence
        
        dementia ignorance
- - - - Eat more fruits and veggies
      - Watching your diet. Yeah, your diet is very important.
      - That might have been healthy, lately, I've been very healthy. But I have decided that I don't eat a big meal at night, I eat it in the afternoon between 12 and 4 and then go to bed this less stomach, less food in my stomach and I feel that's helped me a lot.
      - I think because of more background, my people, my mother and father were farmers, and they lived til they were 86 and We never all whole home family, there was six of us, six kids, poor as bloody church mice. But Jesus, we were healthy. Because we were out working physically and eating, what we were growing, not rubbish out of a fast food shop. And so it came naturally.
      - I've think of Asians, and especially Indians. We grow a lot of stuff that Indians and Asians ate. Like tumeric, bitter melon, chilies, chilies, garlic, and especially tumeric. I've got a lot of faith in tumeric. Yeah, those four or five items are what Asians eat all the time. For the last 30 years, we've been growing this stuff. And we eat it like mad, raw, pulled tumeric out of the ground and rub the dirt off and just ate it. All that sort of stuff. And that could answer. Something you mentioned before about Asians eat a lot of vegetables. You know, always have done, meat I think is a big problem. Even though I've eaten a lot of meat all my life, but I've eaten a lot of vegetables too, especially all this stuff: garlic, chilies, tumeric, bitter, bitter melon. Diabetes, bitter melon for diabetes. You know, all those sorts of things. That's why I keep getting back to diet.
    - - I think I've probably got my head buried in the sand a bit. Because I'm living day by day, trying to make the most of each day without thinking. Too far ahead. I mean, I don't know. Because I think, I mean, probably the kids do it more than me, they said, you know, they sort of a little bit worried that I'm isolated, although now Jo is in my life. So they know, I've got company, but they were worried, I might collapse in the house, and nobody knows about it. And there'd be days before anyone fines me because, but now there's Jo is in me life, they're more satisfied that I'm living here in Kilkivan. And not down with them at the Sunshine Coast, not in their house, but nearby, living nearby.
    - - I think I'm guilty of having reasonably good theoretical knowledge about, diet and exercise, particularly, and I don't implement what I know I should be doing.
  - - - Yeah. Now, if I wasn't here today, I'd be out on the farm working. Every day, I work till midday. And now I knock off my sack myself. And I'll have the rest of the day off. But first five hours every day. It is very physical and mental. Because we got a pretty big operation over there at Woolooga. And I think that that helps. With ageing. And we're living with my younger son. Who is 57-58 or something like that. And that's good. That helps ageing, you know, I have grown up with with all my kids, for the last 60 odd years. And I think that helps. It keeps you young. Yeah. And I want to stay that way. And I'll just keep working. Because mentally, the way I've seen my wife go was dementia. I want to keep mental and physical. I'm very happy with ageing.
      - I think it's something that's instilled into you, as you're growing up in your parents and taught to you. And it's an ongoing thing, to be for living habit. ... Is what I think, because I mean. It's something like you learn as you're growing up, and it continues on through your whole life. Really. I mean, you're guided by your health advisors when you see your doctor or whoever, yes. But a lot of it is just a natural, instinctive thing that have been taught to you as you've been growing up.
    - - I think probably I've found my health is probably something that has stopped me completely, it stopped me 12 months.
      - I've got so much pain now when I walk, so I don't do much.
      - Sometimes it's just as easy to sit at home. It's called laziness isn't it?
      - I walk every morning. Since '92. When I had the heart surgery. Almost hail, rain, or shine. Really heavy rain for me not do it.
      - I definitely don't feel my age, but my body tells me I am.
      - I think you sort of, it probably wore me down, I'll probably be going down a little bit. But don't realise it. And you are working a bit more than how your body feels. If you listen to your body, you're probably not working quite as hard as you were five years ago or 10 years ago. But you don't realise that you're slowly going into a phase where you are slowing down a bit, but I don't feel as I am, but probably am. And if you listen to your body, well then you should stop and do that next after.
    - - Oh healthy, health-wise probably. I just don't think… … I mean...and and the kids. They don't think I am capable. I can't make the bed by myself anymore. … Yeah, and I am hard pressed to, convince them that I can. [can as in capable to do things]
      - Before that I was always the, go to one. … I have solved their problem and now they are finding problems to solve for me.
- - - - Well, considering I can't sort of drive too far,….yeah, you gotta rely on somebody else to take you
      - Kilki-Van
        
        Yeah, but it doesn't go there at the times that I want it to.
    - - It is I've got a very strong attachment to this area, as I think everyone else who lives here. So it's important to me to not just be able to do as Jo said what she wants to do, but also to be able to do it in the place. I want to do it in, not feel that I'm being pushed towards a metropolitan area. If I become less independent. But I also think healthy ageing. It's all about diet and exercise too
      - Stay in your home for as long as you can.
      - Yeah, I think to be able to do it, in your own space, where you want to do it. Yeah. That's important. That's very important. Some people are just not cut out for being.....going through and to go down into all that.
    - - Our neighbour at Christmas Eve and we didn't know, had a fall and the ambulance took her to Kingaroy hospital. And after three hours I said "Now are you alright to go home?" She had nowhere. No one, she didn't bring anybody, she didn't have a book with her to read or a phone, she got a taxi, the cost of 200 something dollars.
      - When you're single, right, then it's a lot of single ladies, now. And until you aren't single, you don't realise it. You still have the same registration link to the utility bills, that you're only doing it on half the money.
- - - - Distrust in GP for dementia information
- - - - Dementia expert
        
        Fallout with health organisations