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Sickle Cell, SOURCES
Centers for Disease Control and Prevention. (2023b,…
Sickle Cell
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Personal Experience
when diagnosed as a young kid, it can be hard to understand what is actually occurring
when diagnosed as a kid, they often time feel as if they missed on being a "normal" kid, which can lead to barriers in their social development
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when pain episodes occurs they often have to ask themselves have to verbalize to the doctor that they need the pain medication and they are not drug seeking
they report being in constant pain and it can become frustrating when medication/management does not work
it's hard to articulate their diagnosis to others so many times they fear speaking about it and people often asked questions that become overwhelming
many have to push through their disease signs and symptoms to live a normal life. Many are determined to not let their diagnosis affect their life.
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risk factors
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People of Mediterranean, Middle Eastern, Indian, and Asian descent
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Diagnostics
blood test: complete blood count (CBC)
-used to check for the form of hemoglobin found in the disease
-part of routine newborn screening
-test can still be done on older as well
genetic test
-help determine which type of sickle cell disease you have or confirm a diagnosis if results from blood tests are not clear
Prenatal screening
-used to diagnosis a baby before it is born
-they collect a sample of amniotic fluid or tissue taken from the placenta
-This testing looks for the sickle hemoglobin gene
-this test cannot determine the severity of the disease
Newborn screening
-procedure: we prick the bottom of a newborns foot and take the blood test the hemoglobin
-used to diagnosis sickle cell disease or if the baby has sickle cell trait (carrier)
-with sickle cell trait, the patient will not have signs or symptoms, but sickle cell disease can be passed on to children
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SOURCES
Centers for Disease Control and Prevention. (2023b, September 1). Managing chronic pain if you have sickle cell disease. Centers for Disease Control and Prevention. https://www.cdc.gov/ncbddd/sicklecell/betterhealthtoolkit/managing-chronic-pain.html#:~:text=Long%2Dterm%20opioid%20therapy%20(LTOT,serious%20risks%20and%20side%20effects. Centers for Disease Control and Prevention. (2023, July 6). Data & statistics on Sickle Cell Disease. Centers for Disease Control and Prevention. https://www.cdc.gov/ncbddd/sicklecell/data.html DrugBank online: Database for Drug and Drug Target Info. DrugBank Online | Database for Drug and Drug Target Info. (n.d.). https://go.drugbank.com/ Khan, H., Krull, M., Hankins, J. S., Wang, W. C., & Porter, J. S. (2023, February). Sickle cell disease and social determinants of health: A scoping review. Pediatric blood & cancer. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9790038/ Mayo Foundation for Medical Education and Research. (n.d.). Sickle cell anemia. Mayo Clinic. https://www.mayoclinic.org/diseases-conditions/sickle-cell-anemia/diagnosis-treatment/drc-20355882 Rutgers Cancer Institute of New Jersey. (2020, December 23). Living with sickle cell disease- personal stories. YouTube. https://youtu.be/yCOvkOCaaSk?si=MyOa_MgTghV82tlx Sickle cell disease (SCD). Cleveland Clinic. https://my.clevelandclinic.org/health/diseases/12100-sickle-cell-disease Sundd, P., Gladwin, M. T., & Novelli, E. M. (2019b, January 24). Pathophysiology of sickle cell disease. Annual review of pathology. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7053558/ Tewari, S., Brousse, V., Piel, F. B., Menzel, S., & Rees, D. C. (2015a, September). Environmental determinants of severity in sickle cell disease. Haematologica. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4800688/ U.S. Department of Health and Human Services. (2023, August 30). Symptoms. National Heart Lung and Blood Institute. https://www.nhlbi.nih.gov/health/sickle-cell-disease/symptoms