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Photo Essay on Arthritis Diagnosis and Social Narrative - Coggle Diagram
Photo Essay on Arthritis Diagnosis and Social Narrative
Societal narrative of "You have a disability/disease, it must confine you in these ways"
Story of when a woman called to ask questions about my disease, almost obsessed with labeling me "diseased" and "physically disabled"
Feelings of confusion, sadness, anger at being repeatedly reminded of my limits and referring to me as diseased/disabled
Learn to navigate world in a new way
Push back against limits, not always good
History of this social narrative
Where does this narrative come from?
Why does it occur?
Who perpetuates the narrative?
Who is impacted by the narrative? Is it different from those who perpetuate it?
Purpose?
Response to the narrative
Real vs imagined limits
Understanding the narrative is both freeing and confining, acceptance of situation can be hard
Responsibility to yourself
Take health into own hands
Move past it, create own narrative
Photo of me with friends who I met through Arthritis Foundation
Ties into creating own narrative
Source of connection
Unique to me, not a lot of people have this opportunity
Silver linings, makes connections with those who can truly relate
Continued involvement with Arthritis Foundation in volunteer work
Miscellaneous thoughts/ideas
People with chronic illness vs people who are healthy. Idea that perception and experience is fundamentally different from others' who don't have chronic issues.
There is a certain level of disease that is socially acceptable, and this would fall into that because it's mostly invisible and I can take care of it on my own. Sometimes becomes socially "unacceptable" disease if it impacts other's lives in anyway
Invisible vs visible diseases and/or disabilities