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FREN 341: Illness Narratives - Coggle Diagram
FREN 341: Illness Narratives
Patient Personhood
Redefinition of self
The Diving Bell and the Butterfly
a memoir by Jean Dominique Bauby, a former editor in chief of Elle magazine who becomes paralyzed in an accident
later it was adapted as an award winning film
Bauby narrates his life from the confines of his paralyzed body by communicating with the one part of his body he could control: his eyelid
he describes the limitations and frustrations of his condition, while also delving into the beauty and richness of his imagination
Lifestyle adaptations
"Embodied Action, Enacted Bodies. The Example of Hypoglycemia"
depicts the experiences of those diagnosed with hypoglycemia and how their lives and routines have changed as a result
discusses the development of one's own bodily awareness as a tool in treating the disease
Autonomy
Remission society
Chronic illness
Temporality
Patient communities
Cancer Culture
Cléo de 5 à 7
captures the emotional and existential journey of Cléo as she grapples with the possibility of her own mortality due to a cancer diagnosis
through a real-time narrative structure, Cléo encounters various people during her day, including a pianist, a soldier, and a lover, each contributing to her evolving understanding of life, love, and her own sense of self
represents one of the first instances of cancer culture being portrayed in the media as a story
"Quand c'est?"
a music video by Stromae in which he encounters various representations of cancer, depicted as shadowy figures or dark, menacing entities
depicts figures as distorted and ominous, symbolizing the insidious nature of the disease
aims to raise awareness about the realities of cancer, shedding light on the challenges faced by those affected by the disease
"Welcome to Cancerland"
a personal essay written by Barbara Ehrenreich in which she shares her own experiences and reflections as a breast cancer patient, providing a critical perspective on the "pink ribbon" culture and the commercialization of cancer awareness
highlights the contradictions between the "pinkwashing" of corporations and the ongoing challenges faced by cancer patients, including financial burdens, inadequate healthcare, and the emotional toll of the disease
Disabilites
Types of illness narratives
Restitution
Quest
Chaos
Storytelling as healing
The Wounded Storyteller
emphasizes the importance of telling the stories of those who are ill
distinguishes between telling stories about illness and the creation of stories through a wounded body
discusses how the continuation of illness narratives affects the social context of different diseases
talks about the benefits of sharing these stories, particularly for the patient themselves
Body Politics
Health activism
The Denver Principles
a set of guidelines developed by a group of individuals with HIV/AIDS during the 1983 Denver AIDS conference
focused on self-empowerment, the importance of autonomy, nondiscrimination, access to education, and equality as a whole
instrumental in shifting the discourse around HIV/AIDS from a purely medical and scientific perspective to one that recognized the importance of patient empowerment and human rights
AIDS Memorial Quilt
is a massive, collaborative art project that memorializes individuals who have died from HIV/AIDS
it has grown exponentially since its inception and consists of thousands of individual panels, each one lovingly crafted by friends, family members, and communities in remembrance of a loved one
the panels are created using a variety of artistic techniques such as sewing, painting, embroidery, and collage, and often include personal photographs, mementos, messages, and symbols that reflect the unique life and personality of the individual being honored.
provides a way for people to publicly mourn and remember their loved ones, raising awareness about the devastating impact of the HIV/AIDS epidemic.
aims to humanize the statistics by putting faces, names, and personal stories to the disease
Treatment inequalities
Marginalized communities
"The Life of Infamous Men"
examines the concept of infamy and explores the lives of individuals who were deemed socially marginal or "infamous" in the 18th and 19th centuries
focuses on the mechanisms of social control and punishment that were imposed on these individuals and the ways in which their lives were regulated and monitored
Memory
Perception
Body subject
Body object
"Discussing the Undiscussable"
criticizes "victim art" as a genre in the place of reviewing a ballet that incorporates the AIDS epidemic
questions the purpose of this kind of art for the audience and what role critics and literary observers play in the discourse of a piece
claims that "medicine is not art"
Identity politics
Politicization of existence
Time
Representation
"Cultural Studies and its Theoretical Legacies"
defines cultural studies as an interdisciplinary field that analyzes culture, society, and power relations and gained prominence in 1960
discusses the concept of representation, emphasizing its role in constructing meanings and identities and how media and cultural texts participate in the production and circulation of representations
emphasizes the agency of individuals and subcultures in actively engaging with and resisting dominant cultural norms and power structures
Healthcare Ethics
Rights of patients
Capitalism
Proliferation of illness
Science has progressed to a point that what might have been a terminal illness in previous centuries can now be treated as a chronic disease that patients can live with their entire lives.
Pharmaceutical companies
Clinical research
Ethical caregiving
Mental-physical Connection
Truth/Reality
La Horla
is a short story written in the form of a diary and follows the experiences of an unnamed narrator who begins to feel an inexplicable and oppressive presence in his life
as the story progresses, the narrator descends into paranoia and madness as he becomes convinced that an invisible being, known as the Horla, is haunting him and slowly taking control of his mind and body
reality is constantly being questioned as the narrator tries everything he can to rid himself go the Horla
Outbreak narratives
AIDS Epidemic
"A Life"
brings up ethical questions about the morality of sharing someone's story as an anthropological account
shares the testimony of Puleng, a 29 year old woman from South Africa suffering from AIDS
discusses the ideas of bios and zoe, which are different ways in which we define life
bios reflects "a sense of life beyond its physiological definition"
Zoe is defined as an ability to make meaning out of life
120 BPM
revolves around the activities of the Paris chapter of the AIDS activist group ACT UP and their fight against the government's lack of action in response to the AIDS epidemic
follows the ACT UP members as they organize protests, demonstrations, and collective action to raise awareness while they simultaneously deal with the emotional toll of losing loved ones from the disease
captures the intensity and urgency of the era, portraying the camaraderie and resilience of the activists as they battle societal stigmas, bureaucratic obstacles, and the devastating impact of the epidemic
also portrays the personal lives of the characters as they navigate relationships and internal struggles about identity and sexuality
Ebola epidemic
In the Company of Men
portrays the points of view of the Ebola virus itself, the bat that infected the first human with Ebola, and a centuries old tree
talks about how humanity exploits the Earth for its own greed and enrichment and how Ebola is a consequence of disrupting natural habitats
each character shares a different perspective as they fight over whose fault is really to blame for the deadly epidemic
Mental wellbeing
Coping mechanisms
In a way, this song and music video serve as a form of coping skill for Stromae as he struggles with his genetic predisposition for cancer.
Dreams
Bodily self awareness