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Hearing about GT, Factors interacting and influencing D-M to GT or to…
Hearing about GT
D-M process to GT
3.Genetic counseling experience
4.D-M process for prevention measures
thinking RRM as an obligation
building consensus around it
de-dramatizing RRM
Factors influencing D-M for Risk-reducing mastectomy (RRM)
women’s self-identity and moral values, prevention norms, risk perception based on lay theories, stage in the life course, and experiences with intensive surveillance + gendered relationship with physician + information in media/blogs/Net
5.Process of disclosure of information
Patterns of responsibility to communicate genetic information (Models/ Types)
Leading responsibility
benefit vs risk discussion
delegated responsibility
benefit vs risk discussion
Overhelming responsibility
benefit vs risk discussion
Soft responsibility
benefit vs risk discussion
Genetic information disclosure's effects
6.2 Ongoing process (relatives are on D-M process)
effect on IC
benefit vs risk
6.3 Missed/ Failed disclosure (relatives not willing to know about GT)
solution : skip to the next relative in the genetic tree
effect on IC
benefit vs risk
6.1 Sucessfull impact of disclosure (--> Relative has done GT)
effect on IC
benefit vs risk
Factors interacting and influencing D-M to GT or to disclose information
2.5 Gene and cancer representations
2.2 Impact of significant others (as support, as past + or - cancer lived experience, as Jewish Askenazi ascendence)
2.1 Individual factors (socioeconomic, personality, genetic literacy interest, family culture about sickness and comunication)
2.3 LCP (stage in life)
2.7 Structural factors (access to GT and insurance, cost, law and privacy)
2.8 Media and blogs on the Net
2.6 medical influence, trust and progress
2.4. impact on offspring (culpability or possibility of prevention)
very high
very low
Theme ordered in chronological events related to D-M process to GT
Carla analysis of communication chain with different "logic of communication"
Reka/Maria analysis