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VIDA, Empatía - Coggle Diagram

- - - - “El sermón se prolongó unos cinco minutos. (Jamás un médico había dedicado tanto tiempo a hablar conmigo). Sermoneaba como una locomotora mientras fijaba la vista obsesivamente en la pantalla de su ordenador”
      - “Pero la consulta médica para mí nunca fue un refugio, sino una cámara de tortura, una trampa”
      - Religión-poder-capitalismo
        
        “El sistema sanitario estadounidense es capitalismo de amiguetes a costa de mi ano”
- - - - “Si la persona en vida guardó silencio al respecto de su deseo de donación, a su muerte la Ley la reconoce como donante, y si sus familiares más cercanos no expresan su negación, se le reconocerá su derecho a serlo” (57)
      - “España es el único país del mundo en el que la tasa de donación y trasplantes ha aumentado de forma sostenida desde que se creó la Organización Nacional de Trasplantes (ONT), hace ya 19 años. Nuestro país, con una tasa de 34,3 donantes por millón de población (pmp), supera ampliamente la de Estados Unidos (26,1 pmp) y duplica la tasa media de la Unión Europea” (59)
- - - - María y yo, Miguel Gallardo
        
        “Allá a lo lejos, en medio de la playa vacía estaba María, pequeña en la distancia, jugando con su preciosa arena. Me dio un poco de tristeza verla ahí sola, pensando en el resto de nosotros, en cómo nos acercamos a ella y luego nos volvemos a hacer nuestras cosas”
        
        “En mis fantasías (soy una persona muy imaginativa) tiendo a pensar que María puede ver la composición de los átomos de la arena o, quizás ve mundos enteros o estrellas o… solo arena cayendo. Pero cuando la arena pasa entre sus dedos, María es feliz”
- - - - “Los residentes describieron que la situación había afectado a su formación en 126 (82,8%) casos, alegando diferentes motivos: 99 (64,7%) la pérdida de rotaciones no recuperables, 27 (17,7%) por un menor número de pacientes neurológicos evaluados y 7 (4,6%) por la disminución en el número de guardias propias de la especialidad” (126)
      - “La pandemia ha tenido un gravísimo impacto social y sanitario cambiando nuestros modos de vida y comprometiendo el funcionamiento de todo el sistema sanitario. Uno de los colectivos más afectados ha sido el de los médicos en formación, en este caso los residentes de neurología” (129).
  - - - “Understanding Race in a Pandemic”, Sasheenie Moodley
        
        “To complement these quantitative statistics, it is important to consider the social impact of pandemic and protest. Indeed, we should ponder the social impact of racial prejudice and racial adversity. Many Black bodies are quite literally stuck between a rock and a hard place”
        
        “The media shows us that Black individuals “face” violence, adversity, and prejudice. These are branches of deeply rooted structural (and institutional) racism. Through community conversations and social media, we have learned that Black individuals “feel” fear, anxiety, and pain. (Although social scientist Donald Polkinghorne reminds us that we can never know exactly what another person “feels” regardless of what they communicate or share)”
- - - - "Su antidepresivo más grande es la música. Es un antidepresivo fantástico. Se la pone a todas horas. Hasta cuando duerme se la pone. Y canta a oscuras. Se coloca unos auriculares en la tablet y se queda dormido escuchándola... Si no fuera por la música... El fin de semana pasado no dormimos demasiado porque la tablet se le quedó sin batería y se despertó"
    - - “One of the big dilemmas in the care of a patient with dementia at the point of refusal of food and/or drink by mouth is what to do about the lack of nutrition and hydration”
      - “In The Question Concerning Technology, Martin Heidegger wrote of the danger of the ‘stultified compulsion to push on blindly with technology’ versus the similar risk at the opposite end of the spectrum, ‘to rebel helplessly against it and curse it as the work of the devil.’ Instead of taking either extreme, he encourages us to free ourselves by opening our minds ‘expressly to the essence of technology’ (Heidegger 1977, pp 3-35)”
    - - independencia, dependencia
      - vejez
      - control
      - amor
      - albedrío
      - compasión
      - recuerdos
      - pérdida
      - muerte
- - - - Susan Sontag, Aids and Its Metaphors (1998) :
        
        “Military metaphors contribute to the stigmatizing of certain illnesses and, by extension, of those who are ill. It was the discovery of the stigmatization of people who have cancer that led me to write Illness as Metaphor” (11).
        
        la estigmatización
        
        “‘Plague’ is the principal metaphor by which the AIDS epidemic is understood. And because of AIDS, the popular misidentification of cancer as an epidemic, even a plague, seems to be receding: AIDS has banalized cancer” (44).
    - - La narativa
        
        Dean Allbritton, It Came From California: The Aids Origin Story in Spain (2016)
        
        “As illness broke down lines separating nations and groups, illness narratives and origin stories stepped in to fabricate new borders between the healthy and sick, the good citizen and the bad, the Spanish and the other. The results still echo down through time, still have an effect on policy and funding, and still create meaning out of the chaos of illness” (164)
        
        “These stories of the anonymous gay man and the hemophiliac brothers serve as clear examples of the power of the outbreak narrative in popular culture. As index cases of AIDS, they defined the illness for a whole country, and intimated the risk believed to be inherent to certain groups and practices” (151)
        
        “The erasure of a person into a case covers up the individual and reduces him/her into a string of recognizable symptoms that coalesce into illness. This is clearly not to say that establishing the index case is a purely damning process to the public or to isolated individuals; on the contrary, it is vital to public health authorities and can help quell diseases by determining chemical origin, potential rate of infection, and likely contact routes” (146)
        
        Jesús M. de Miguel & David L Kirp, Spain: An Epidemic of Denial, Chapter 5
        
        “The policy response is another matter. ‘This society has more or less clarified the right of sick people’ writes Hector Anabitarte, ‘but not the right to avoid illness. The health network did not hesitate to administer sophisticated treatment to incurably ill patients, but it wavered on publicity campaigns… AIDS remains a challenge, a provocation” (182)
        
        “AIDS has challenged the social traditions of Spain, and some of the changes it has wrought have been for the good. The advent of the disease has prompted fuller discussion of drug use and sex (including male responsibility for contraception) and somewhat greater attention to the plight of the most marginal groups” (182)
        
        “Kaposi’s Sarcoma and Taxoplasma Gondii Brain Abscess in a Spanish Homosexual”, Vilaseca et al (1982)
        
        “Although he had a stable, one-partner relationship, during visits to New York in 1974 and Turkey in 1980 he had had sexual contacts with different partners” (572)
        
        “AIDS 1969: HIV, History, and Race”, Ted Kerr
        
        “Speaking about the disconnect between who is being burdened by HIV and who is being depicted within representations of HIV, TAC said in an interview, ‘When we started our investigation and began to realize what would have been on these walls if Black voices were respected in the curation it became clear that piece by piece our history is being stolen from us.’ -Tacoma Action Committee (TAC)”.
        
        “We don’t know how to tell the history of AIDS before AIDS because we don’t know it yet and we don’t know how to hear and share what we do know. Instead, we keep repeating the history we think we know to be true, the one that starts in 1981.”
        
        “Dispatches on AIDS & COVID-19”, Cheng, Juhasz, Shahani
        
        “The goal was not simply to insert ignored groups into founding narratives without questioning the centrality of those narratives in the first place and interrogating how they came to be. So for example, in decentering the global north, we were not interested in simply theorizing the global south through what Bishnupriya Ghosh calls in her contribution in the book, a “cartographic projection.” The attention to difference without essentializing difference is particularly important as we extend our conversations about AIDS into thinking about COVID-19”
        
        “AIDS is not the only metaphor for premature death. So is the prison, or living under occupation, or in underdevelopment, or living while Black, while trans, while undocumented, while poor. Many folks living with AIDS are also living with a combination of the aforementioned conditions”
- - - - “a fascination not just with the novelty and danger of the microbes but also with the changing social formations of a shrinking world”
      - “Disease emergence dramatizes the dilemma that inspires the most basic of human narratives: the necessity and danger of human contact”
      - Epidemics dramatize the need for regulation with, as George Rosen puts it, ‘‘terrifying urgency,’’ and they set in motion what he calls ‘‘the administrative machinery for disease prevention, sanitary super- vision, and, in general, protection of community health.’’ They paint the pathways of interdependence with the brush of mortality and can help to overturn or reinforce governing authority.
    - - “Grief at a Distance”, Sarah Roth
        
        "David Kessler, co-author of On Grief and Grieving, writes that we are all dealing with “the collective loss of the world we knew.” Alongside this loss, he writes, grief can make a home of the body. It transforms one’s ability to focus, the texture of one’s sleep. It shifts the ebb and flow of anger and anxiety, headaches and fatigue."
- - - - “To enter a story is to make room for its teller, and the doctor with narrative skills habitually confirms the patient’s worth in the process of attending seriously to what he or she tells” (863).
      - “Narrative competence: the ability to acknowledge and understand the unique story of a patient. Illness is not confined to a list of symptoms, but rather is a manifestation of a web of forces and thus is conveyed in many ways” (863).
      - “When a doctor practices medicine with narrative competence, he or she can quickly and accurately hear and interpret what a patient tries to say” (862).
    - - Laura Gonzales & Rachel Bloom-Pojar, A Dialogue with Medical Interpreters About Rhetoric, Culture, and Language (2018)
        
        “Because language is fluid, “accurate” or “precise” translations of specific words or phrases are constantly shifting” (198)
        
        “Jaylyn: Sometimes we use humor in healthcare to ease tension” (204).
        
        “Medical interpreters are individuals trained to facilitate conversations between healthcare providers and patients who speak different languages” (197).
      - Elizabeth L. Angeli & Christina D. Norwood, The Internal Rhetorical Work of a Public Health Crisis Response (2019)
        
        On techne and gut feeling: “Much like a skilled sailor knows how to maneuver a sailboat through stormy seas, public health crisis communicators routinely draw from their expertise to adapt context-specific strategies that help health professionals and the public navigate unprecedented scenarios (Atwill, 1998; Wickman, 2012)” (211).
        
        “By addressing how gut feelings impact decision making in a scenario that is characterized by unknowns, we might begin to understand where and how gut feelings factor into public health crisis response.” (211)
      - “Narrative Humility or Empathy?”, Marcus Mosley (2020)
        
        “Narrative humility acknowledges that our patients’ stories are not objects that we can comprehend or master, but rather dynamic entities that we can approach and engage with, while simultaneously remaining open to their ambiguity and contradiction, and engaging in constant self-evaluation and self-critique about issues such as our own role in the story, our expectations of the story, our responsibilities to the story, and our identifications with the story—how the story attracts or repels us because it reminds us of any number of personal stories”
        
        “Narrative humility is having the understanding that a patient’s story belongs to him or her”
      - Comunicación del género
        
        “La imposible dedicatoria”, Paul B Preciado
        
        "La transición ha subrayado la similitud de nuestros cuerpos y de nuestros rostros, como sacando a flote un fenotipo que el estrógeno mantenía escondido. Aunque no se lo digo, ese parecido resulta tan inquietante o tan conmovedor para mí como para él"