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A qualitative study to explore Registered Nurses understanding and…

- - - - For Nurses
      - For Doctors
      - For the wider MDT
    - - Roles and Responsibilities
      - Understanding role played in patient journey
      - Setting expectations
  - - - Involvement with teaching/training
      - involvement with MDT
      - Discharge and follow up with MDT
    - - Understanding PRS
      - Prong
      - Material for post discharge
      - Information overload vs meeting needs
      - Language barriers
    - - Of diagnosis
      - of the prong
      - of having a new baby
    - - Impact on discharge
      - Information overload for families
      - New baby vs baby with PRS
      - Current teaching/training booklet
  - - - Audit
        
        Locally
        
        Benchmarking Care
      - With wider cleft network
      - Within the organisation
        
        Improved MDT Working
        
        Improved patient journey
    - - For staff
        
        Locally
        
        DGH/Community
      - For families to understand condition and patients journey
    - - At local level
      - Providing study days
      - Providing hands on experience
    - - for cleft service
      - For respiratory
        
        Pre-transfer
        
        Post discharge with Prong
- - - - Setting expectations
      - Support
      - Education regarding PRS and journey +/- prong
    - - Providing Support
      - Understanding emotional impact of diagnosis and interventions/investigations
      - Providing MDT input on journey as inpatient and outpatient
      - Teaching/Education
        
        Giving feedback
        
        Following and giving structure
        
        Expectation
    - - Point of contact within respiratory
      - Listening and acting on concerns
      - Thinking of other ways/points of contact
      - Clear expectations for patient journey
  - - - Who's who
      - Role and objectives
    - - Locally
      - With other cleft centres/teams
  - - - For families
      - For MDT
      - Sharing practice/experience
    - - Discharge
      - Roles and Responsibilities
      - Improved Team Working
      - Improved Communication
        
        Across the MDT
        
        With families
    - - Investigations/Interventions
      - Education/Support
      - Pathway to follow
  - - - Teaching materials for staff
      - Teaching/support information for families
      - Pathway to understand journey
  - - - Following a structure
- - - - Providing structure
      - Clear MDT expectations
      - Improved working
      - Sharing skills/knowledge and experience
  - - - Experience
      - Teaching materials
- - - - Tests/Investigations to carry out
      - Information for families
      - Information/Education for local staff
    - - Whilst inpatient
      - Understanding of patient journey post ward discharge
    - - Setting expectations
      - Seeing goals
      - Understanding the MDT
- - - - Prong
      - Different looking infant
  - - - Development
      - Auditability
    - - Emotional support
      - Educational support
  - - - Whilst inpatient
        
        Understanding MDT roles and resposibilities
        
        Joint reviews and family meetings
      - In outpatient setting
        
        Joint Cleft/Respiratory outpatient clinic
        
        Supporting patient journey
    - - Pre-admission
      - During admission
      - Post discharge
        
        Respiratory point of contact
        
        NPA lead
    - - Staff development to better support families
      - Shared learning
      - Education vs Experience