A qualitative study to explore Registered Nurses understanding and experience in the the use of Nasopharyngeal Airways in the non-surgical management of infants with Pierre Robin Sequence

Education

Communication

Multi-disciplinary Team

Treatment Pathway

Patient/Parent Journey

Communicating with parents

MDT Communication

Setting Expectations

Communicating with other areas/teams

Discharge

Better Working

Challenges

Understanding Each other

Local Teams (DGH and Community

Providing Structure

Communication

Discharge

Education

Impact of diagnosis

Inpatient Journey

Making it better

Local Staff Education

Parent Education

Teaching/Educational Materials

DGH/Local/Community Education

Whilst at locals

When inpatient

Post Ward Discharge

Point of contact within respiratory

Listening and acting on concerns

Thinking of other ways/points of contact

Setting expectations

Support

Education regarding PRS and journey +/- prong

Providing Support

Understanding emotional impact of diagnosis and interventions/investigations

Providing MDT input on journey as inpatient and outpatient

Teaching/Education

Giving feedback

Following and giving structure

Expectation

Starting it early

Point of contact for different members of the MDT

Being clear about follow up - when and with who

More joint follow up between Respiratory and Cleft team

Timeline/Poster/Education

Understanding the MDT Roles and Responsibilities

Structure for the MDT

For DGH MDT

Discharge

Roles and Responsibilities

Improved Team Working

Improved Communication

Investigations/Interventions

Education/Support

Pathway to follow

Across the MDT

With families

Support and Education

Pathway to follow

Feedback

Setting expectations

Available information

Teaching materials for staff

Teaching/support information for families

Pathway to understand journey

Clear expectations for patient journey

Understanding the MDT

Who's who

Role and objectives

Pathway to provide structure

Need to improve communication between MDT

Understanding Clinical Guidelines

Meeting Educational Needs of MDT

Education vs Experience and how to share/improve this

Getting it right

Following a structure

For families

For MDT

Sharing practice/experience

Locally

With other cleft centres/teams

Education vs Experience

Providing Pathway to follow

Sharing information

Educational Materials

Teaching MDT

Improved collaborative working for best outcomes

At local level

Providing study days

Providing hands on experience

For staff

For families to understand condition and patients journey

Point of contact

for cleft service

For respiratory

Pre-transfer

Post discharge with Prong

Setting expectations

Teaching materials

Emotional impact

When to start

Impact on discharge

Information overload for families

New baby vs baby with PRS

Current teaching/training booklet

Of diagnosis

of the prong

of having a new baby

Involvement with teaching/training

involvement with MDT

Discharge and follow up with MDT

Understanding PRS

Prong

Material for post discharge

Information overload vs meeting needs

Language barriers

click to edit

Providing education and experience

For Nurses

For Doctors

For the wider MDT

Understanding the MDT

Roles and Responsibilities

Understanding role played in patient journey

Setting expectations

Clinical Guidelines

Nurse Competency booklet

Sizing guidelines

How to make a prong

Developing teaching materials to share with locals

Audit

With wider cleft network

Within the organisation

Improved MDT Working

Improved patient journey

Locally

Benchmarking Care

Locally

DGH/Community

Setting expectation for families

Pathway

Support for families

Skill and knowledge development

Emotional support

Educational support

Communication

MDT Working

Getting head around it

Anxiety/fear

The unknown

Feeding

Asthetics

Prong

Different looking infant

Seeing past the now and understanding the future

Burden of care for families

Better MDT Working

Improved MDT Communication

Whilst inpatient

In outpatient setting

Education

Staff development to better support families

Shared learning

Education vs Experience

Pre-admission

During admission

Post discharge

Joint Cleft/Respiratory outpatient clinic

Supporting patient journey

Understanding MDT roles and resposibilities

Joint reviews and family meetings

Respiratory point of contact

NPA lead

Development

Auditability

Providing a structure to follow

Getting it right

Preventing/reducing delays

MDT understanding each others roles

Understanding follow up and ongoing MDT input

For DGH MDT

For local MDT

For families

For community teams

Whilst inpatient

Understanding of patient journey post ward discharge

Clear structure

Who is who and how to contact

Point of contact for MDT

Point of contact for Families

For Audit

Tests/Investigations to carry out

Information for families

Information/Education for local staff

Setting expectations

Seeing goals

Understanding the MDT

Provide structure to education

Development of educational materials to share

Structure to parent education

Who is who

Understanding each others roles

Improved communication

Setting expectation

Supporting each other better

Understanding each others roles

Communication between MDT

Time to review

Leadership

Discharge

Follow up post discharge

Working on a pathway

Providing structure

Clear MDT expectations

Improved working

Sharing skills/knowledge and experience

Providing support and education

Giving structure to care

Ensuring right knowledge and skills

Shared learning

Experience

Teaching materials

Sleep studies/Investigations