A qualitative study to explore Registered Nurses understanding and experience in the the use of Nasopharyngeal Airways in the non-surgical management of infants with Pierre Robin Sequence
Education
Communication
Multi-disciplinary Team
Treatment Pathway
Patient/Parent Journey
Communicating with parents
MDT Communication
Setting Expectations
Communicating with other areas/teams
Discharge
Better Working
Challenges
Understanding Each other
Local Teams (DGH and Community
Providing Structure
Communication
Discharge
Education
Impact of diagnosis
Inpatient Journey
Making it better
Local Staff Education
Parent Education
Teaching/Educational Materials
DGH/Local/Community Education
Whilst at locals
When inpatient
Post Ward Discharge
Point of contact within respiratory
Listening and acting on concerns
Thinking of other ways/points of contact
Setting expectations
Support
Education regarding PRS and journey +/- prong
Providing Support
Understanding emotional impact of diagnosis and interventions/investigations
Providing MDT input on journey as inpatient and outpatient
Teaching/Education
Giving feedback
Following and giving structure
Expectation
Starting it early
Point of contact for different members of the MDT
Being clear about follow up - when and with who
More joint follow up between Respiratory and Cleft team
Timeline/Poster/Education
Understanding the MDT Roles and Responsibilities
Structure for the MDT
For DGH MDT
Discharge
Roles and Responsibilities
Improved Team Working
Improved Communication
Investigations/Interventions
Education/Support
Pathway to follow
Across the MDT
With families
Support and Education
Pathway to follow
Feedback
Setting expectations
Available information
Teaching materials for staff
Teaching/support information for families
Pathway to understand journey
Clear expectations for patient journey
Understanding the MDT
Who's who
Role and objectives
Pathway to provide structure
Need to improve communication between MDT
Understanding Clinical Guidelines
Meeting Educational Needs of MDT
Education vs Experience and how to share/improve this
Getting it right
Following a structure
For families
For MDT
Sharing practice/experience
Locally
With other cleft centres/teams
Education vs Experience
Providing Pathway to follow
Sharing information
Educational Materials
Teaching MDT
Improved collaborative working for best outcomes
At local level
Providing study days
Providing hands on experience
For staff
For families to understand condition and patients journey
Point of contact
for cleft service
For respiratory
Pre-transfer
Post discharge with Prong
Setting expectations
Teaching materials
Emotional impact
When to start
Impact on discharge
Information overload for families
New baby vs baby with PRS
Current teaching/training booklet
Of diagnosis
of the prong
of having a new baby
Involvement with teaching/training
involvement with MDT
Discharge and follow up with MDT
Understanding PRS
Prong
Material for post discharge
Information overload vs meeting needs
Language barriers
click to edit
Providing education and experience
For Nurses
For Doctors
For the wider MDT
Understanding the MDT
Roles and Responsibilities
Understanding role played in patient journey
Setting expectations
Clinical Guidelines
Nurse Competency booklet
Sizing guidelines
How to make a prong
Developing teaching materials to share with locals
Audit
With wider cleft network
Within the organisation
Improved MDT Working
Improved patient journey
Locally
Benchmarking Care
Locally
DGH/Community
Setting expectation for families
Pathway
Support for families
Skill and knowledge development
Emotional support
Educational support
Communication
MDT Working
Getting head around it
Anxiety/fear
The unknown
Feeding
Asthetics
Prong
Different looking infant
Seeing past the now and understanding the future
Burden of care for families
Better MDT Working
Improved MDT Communication
Whilst inpatient
In outpatient setting
Education
Staff development to better support families
Shared learning
Education vs Experience
Pre-admission
During admission
Post discharge
Joint Cleft/Respiratory outpatient clinic
Supporting patient journey
Understanding MDT roles and resposibilities
Joint reviews and family meetings
Respiratory point of contact
NPA lead
Development
Auditability
Providing a structure to follow
Getting it right
Preventing/reducing delays
MDT understanding each others roles
Understanding follow up and ongoing MDT input
For DGH MDT
For local MDT
For families
For community teams
Whilst inpatient
Understanding of patient journey post ward discharge
Clear structure
Who is who and how to contact
Point of contact for MDT
Point of contact for Families
For Audit
Tests/Investigations to carry out
Information for families
Information/Education for local staff
Setting expectations
Seeing goals
Understanding the MDT
Provide structure to education
Development of educational materials to share
Structure to parent education
Who is who
Understanding each others roles
Improved communication
Setting expectation
Supporting each other better
Understanding each others roles
Communication between MDT
Time to review
Leadership
Discharge
Follow up post discharge
Working on a pathway
Providing structure
Clear MDT expectations
Improved working
Sharing skills/knowledge and experience
Providing support and education
Giving structure to care
Ensuring right knowledge and skills
Shared learning
Experience
Teaching materials
Sleep studies/Investigations