Marfan Syndrome

One of the most common inherited disorders that affect connective tissues (the fibers that support and anchor the organs and other structures in the body)

Men and women are affected equally with this genetic disorder.

Occurs once in every 10,000 to 20,000 people

Individuals who have Marfan syndrome are advised to avoid contact and competitive sports and isometric exercise like weight lifting and other static forms of exercise. They can participate in swimming.

Marfan syndrome is caused by mutations in the FBN1 gene.

Treatment: treated by a multidisciplinary medical team that includes a geneticist, cardiologist, ophthalmologist, orthopedist and cardiothoracic surgeon.

Causes: inherited from parents,

Symptoms

Parents can be tested for the mutated gene in order to se chances for their children.

Diagnosis:

Long arms, legs and fingers

Tall and thin body type

Curved spine

Chest sinks in or sticks out

Flexible joints

Flat feet

Crowded teeth

Stretch marks on the skin that are not related to weight gain or loss

Cardiovascular system

Eye problems

Pregnancy related problems

Inherited from parents

Only one parent needs to carry the mutated gene

Defective gene creates abnormal protein called fibrillin

Based on family history, and presence of symptoms.

Dilatation or dissection of the aorta at the level of the sinuses of Valsava

Ectopia lentis (dislocated lens of the eye).

Lumbosacral dural ectasia determined by CT scan or magnetic resonance imaging (MRI).

Four of the eight typical skeletal features