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Solution (Parent as the expert (· “I use the wait and watch approach. I…
Solution
Parent as the expert
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“The reason I went into Social Work is because I wanted to talk about these things. And I wanted to talk about hard things. And I didn’t want my mom to sit in silence with a panic disorder and me to sit in silence with my own anxiety. And my sister and her struggles. All in the same family. Because no one was talking about anxiety.”
I think asking a parent, what are your concerns? What do you see? What do you think will work? What has worked for you? Kind of validating whatever they’ve done. In terms of being proactive for their child. Congratulating them on the things you see them naturally doing in the office. You’re a great parent and you’re looking out for your child.
○ Strategies to engage - Ask first about their questions, engaging all parties present
I was taught to ask the parent, what do you think? Some populations look at me like that’s crazy—you’re the doctor! Research different ways of saying things—so it doesn’t sound like “I don’t know”
· “I realized a family’s visit with me is more than just 15 minutes. The visit is a snapshot in what happens in that person’s life”
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“Find hope and strength and passion to start fresh (46:30) that's our opportunity as pediatricians it's the most wonderful thing you can do”
Meet where they are
I do recommend this, but I can see you’re not ready, you let me know – so they retain autonomy and control
Leave control w parents – these are my recommendations, but you know him best and I know you will do right by him, so you let me know when you’re ready
· “I glance at questionnaire I don’t do it from the questions themselves.” (use it to guide the conversation)
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Teaching this to other Peds: I think I try to show them how hard it is to get all the information in an office visit, and utilizing the parent helps your job become much easier. You don’t want to miss kids with needs, you’re not going to miss kids with needs if you partner with that parent. I take it from the approach of not necessarily proving to them that the parents are correct, but I convey that it is so difficult for us if we don’t use the parent. There’s one study where children with ASD act typical most of the time—really hard to pick them up in a brief office visit. If they have more typical behaviors than atypical behaviors, then you might not see that in 15 minutes. But the parent gets to see the child in multiple settings across time, so they really are my eyes on that child’s development.
Parents as partners or informants, making peds' jobs easier
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Normalize
Normalize and offer hope - Talks about other families – they are not the only ones – I’ve seen other families with the same thing – I’ve seen them improved
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“Interested in whole child, not just illnesses but developmental and behavioral concerns as well”
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○ Starts in waiting room, front staff notified of patient specifics
○ Bulletin board postings to note the office is accepting of all identifications and questions
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