Children
Legal Principles
Parents' power to consent to medical treatment of a child who lacks capacity
English law's approach to disputes between 1) parents and 2) parents and medical staff
Protections of parents' interests in decision making. Is it adequate?
Should there only be court interference when child is at "risk of significant harm"? (S31(2)(a)) / S100(4)(b))
give 'due weight and consideration' to the wishes and feelings of the parents and of the child (S1(3)(a))
Statutory Law
Children Act 1989
S2(2)(7) "Where more than one person has parental responsibility for a child each of them may act alone and without the other… but nothing in this part shall be taken to affect the operation of any enactment which requires the consent of more than one"
S100(4)(b) "The court may only grant leave if it is satisfied that there is reasonable cause to believe that if the court's inherent jurisdiction is not exercised with respect to the child he is likely to suffer significant harm"
S22(4) (consistent with Art 12 of UNCRC) - authority must as far as reasonably practicable, ascertain the wishes and feelings of the child
S22 (5) give due weight and consideration to those wishes and feelings
S31(2)(a) "significant harm"
UNCRC - all children under 17 have certain rights. - special protective measures and assistance / be informed and participate in their rights
Academic Critique
Auckland and Goold (2019) - arguments for SH threshold: balances commitment to liberty (Art 9 ECHR) w need to protect child, accords with public expectations, consistent with S31 of Children Act 1989
Emma Cave "coercive medical treatment is one of the most serious invasions of bodily autonomy sanctionable in a democratic society"
arguments against SH threshold: Difficulty of assessing harm and its significance (clear in most cases?), Danger of chilling effect – parent not disagreeing because of stigma, Danger of escalation to care proceedings
Rachel Taylor (2019) "the law regards the upbringing of children not as a matter of exclusive parental rights to be defended unless fortified, but as a collaborative responsibility in which parents take the leading role"
Right to consent (Gillick) vs Right to refuse (does this exist? Not really, Hereford Primary Care Trust did drop case after child protection officer found the 13 yr old was adamant she did not want heart transplant.)
S3(5)(b) non-parents may have parental responsibility. They are entitled to do "what is reasonable in all circumstances to safeguard or promote the child's welfare"
Case Law
Re J [2000]
Re B and G [2015]
Brian D Earp (re circumcision) should be left until boy is old enough to consent
Marie Fox and Michael Thomson problem with family relationships taking priority over the child's interests and rights (esp w regard to religious beliefs, circumcision?)
Re C [2003]
Emily Jackson 'zone of parental discretion' where parents agree re circumcision and immunisation p305
F v F (MMR Vaccine) [2013]
Gillick v West Norfolk and Wisbech AHA [1984]
wardship / inherent jurisdiction / statute - parens patriae
Re J [1991]
Re D [1976]
Under Children Act, court can issue a specific issue order or prohibited steps order to determine what treatment a child should receive (though they cannot dictate what a child will have)
S1(1) In any question affecting a child's upbringing, her welfare must be the paramount consideration (first given statutory form in Guardian of Infants Act 1925)
GMC, 0-18yrs: Guidance for all doctors, [2018]: (12) An assessment of best interests will include what is clinically indicated. Also consider: (a.) the views of the child/young person, so far as they can express them, including any previously expressed preferences (b.) views of parents (c) views of others close to the child (d) cultural, religious, or other beliefs and values of the child(ren)/parents (e) views of other healthcare profs looking after the child (f) which choice will least restrict the child's future options
Re Y (bone marrow donations) [1996]
re sterilisation (now contraceptives are widely available and effective, rarely will be seen as 'least restrictive option')
Ashley X (United States) [2007] - but in 2008 mother sought hysterectomy for her daughter Katie Thorpe and the hospital refused.
N Tan and Iain Brassington (2009) benefits to Ashley were minimal. Treatment was invasive and not palliative, it didn't treat existing symptoms, reason given by the doctors was that it was done 'to make caring for the child less burdensome and therefore more accessible'. It was an attempt not to meet the challenges of Ashley's conditions but not to have to meet them
Re JS (disposable of body) [2016]
An NHS Trust v SR [2012]
Re JM [2015]
Re T [1997] (EJ described as 'anomalous judgement')
Re Z (freedom to publication) [1995]
NHS Trust v A (bone marrow transplant) [2007]
Re King [2014]
Jo Bridgman Critical of Baker J use of 'reasonable' in his judgement and because he 'gave no further consideration to either his welfare or his rights'. Fact that 'reasonableness' was a factor does not reflect established law. (In Re King 2014)
Royal College of Paediatrics and Child Health (2015) 3 sets of circumstances where it is appropriate to consider limitation of treatment: 1) Limited quantity of life 2) limited quality of life (no overall qualitative benefit) 3) Informed, competent, supported refusal of treatment
Re A [2015] (fruit stem)
An NHS Trust v B [2006]
Re K [2006]
Great Ormond Street Hospital for Children NHS Foundation Trust v Yates [2017] (Charlie Gard)
futility of treatment / overall commensurate benefit
NHS Trust v Baby X [2012]
Alder Hey Children's NHS Found Trust v Evans [2018] (Alfie Evans)
Ranjana Das (2018) Gard and Evans cases have mobilised 'anti-expert' populist rhetoric, created through an 'evil outgroup' (state healthcare, judiciary) and a wronged in-group (private individuals and parents of ill children).
Douglas Diekema (2004) "the proper question is not 'is this intervention in the child's best interest?' but rather 'does the decision made by the parents significantly increase the likelihood of serious harm as compared to other options?' Parental decisions that do not sig. inc. harm should be tolerated.
Dominic Wilkinson and Tara Neir (2016) "parents make decisions that are not in the best interests of their children… in those areas parents are given a degree of freedom. We accept that it is important to allow parents to make decisions, good and bad, for themselves and for their children." (only if their decisions will risk serious harm should the state intervene)
Jo Bridgeman (2018) If court decides a parent's decision is putting a child in sig harm then the criteria for removing the child would also be met.
Jo Bridgeman (2017) trusts and parents ought to 'work in partnership' and avoid 'divisive, stressful, legal proceedings'
In the matter of E (A Child)(Medical treatment) [2016]
likely effect would be that the inquiry would 'descend into a discussion of what is meant by 'harm' and how much of it is necessary to be 'significant' in a medical context. Best Interests test allow SH to be considered within a wider context of other considerations.
Dominic Wilkinson and Julian Savulescu (2018) "Continued intensive care…represents an unreasonable and unfair use of limited healthcare resources… it may have been better to allow the parents to take Charlie overseas months ago. Indeed, even if we accept that that would have been contrary to Charlie's BIs, it may have been a lesser harm overall"
Nuffield Council on Bioethics (2006) "Clinical committees could be charged to review all decisions made in relation to withdrawal of intensive care… Such a review would ensure an external and independent evaluation of a baby's interests…"
Jo Brierley, Jim Linthicum and Andy Petros (2013) 3 yr period, 203 children had life support withdrawn/limited. 186 families agreed. 6 more were resolved, but 11 involved long and challenging discussions largely based on sanctity of life. "We suggest it is time to… facilitate rapid and default access to courts in such situations when the BIs of the child are compromised in expectation of the miraculous"
Conjoined Twins: Re A [2000]
John Harris: "there is something about Mary's life expectancy that makes plausible the decision in Re A… it would not have been a biographical life, not the life of a person"
S3(1) 'Parental responsibility' means all the rights, duties, powers, responsibilities and authority which by law a parent of a child has in relation to the child and his property'
Re B (DS, intestinal blockage) [1981]
Ronan Gillon (2001) "The parents were neither incompetent nor negligent - the standard for depriving parents of such authority… (the courts) should have allowed the parents to refuse medical intervention while still ruling as it did, that such separation would not have been unlawful if parents consented"
Barbara Hewson (2001) "Ward LJ use of pejorative language perpetuated idea of 'unworthiness' and that Mary was positively culpable, and by the end, in a logical leap, he portrays Mary as killing Jodie. His description was inaccurate and this was not Mary's fault.
Re X ( A Child)(Cap to consent to termination) [2014]
Gillick competency (a 'developmental stage' (Lord Donaldson, in Re R [1992])
R (on application of Axon) v Secretary of State for health
An NHS Trust v A [2014]
Kirsty L Moreton (2015) "It is inconsistent that the law rejects collaboration in the decision making process only to call upon it to deal with the consequences of that decision"(Re An NHS Trust v A 2014)
Re S [1994]
Re E [1993]
Re JA [2014]
Re R [1992]
Court cannot dictate treatment to be given to a child (Lord Donaldson)
Doctors owe the child a duty of care in accordance with good medical practice (Bolam v Friern Hosp Management Committee [1957])
Wyatt v Portsmouth Hospital NHS [2005]
Lord Scarman in Gillick: Once child reaches Gillick competency, the rights of the parents are 'terminated'.
MDA Freeman (1983) What sorts of action or conduct would we wish, as children, to be shielded against on the assumption that we would want to mature to a rationally autonomous adulthood and be capable of deciding on our own system of ends as free and rational beings?
Hewer v Bryant [1970]
Stephen Gilmore 2009 "Gillick was essentially a case about children's welfare…I shall argue that the solution adopted by their Lordships suggests that parental discretion is regulated by reference to child welfare, taking into account the child's abilities, and that the boundary of discretion lies at the point at which the parent's protective role can be safely abandoned."
Gillick eschewed any rule of absolute parental authority and the idea that the child's intellectual ability is irrelevant. (Gilmore) Lord Fraser stated that the solution was "What is best for the welfare of the particular child" and gave 5 conditions which a doctor would have to be satisfied in.
Glass v United Kingdom [2004]