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Who Should Invisible Illness Sufferers' Disclose Their Disability to?
Who Should Invisible Illness Sufferers' Disclose Their Disability to?
ADA
Stands for Americans with Disabilities Act
created in 1990
prohibits discrimination against individuals with disabilities in all areas of public life, including jobs, schools, transportation, and all public and private places that are open to the general public
Who to Disclose to
Employer/School Adm.
Pros:
accommodations necessary
protected under ADA as employee (partially)
understanding in SOME situations
Cons:
viewed as less capable
employers find ways around protection to fire
social pariah among fellow employees
some people aren't understanding
Friends/Family/Significant other
Pros:
support system
more understanding as new friends
Cons:
can lose friends
might make friend uncomfortable
friend could view disabled as "different"
Government
Cons:
bystanders don't understand, don't care
can lead to hostility and potentially dangerous situations
people ignore handicap laws
hard to get
Pros:
handicap access/public access
protection under the law
Psychological Impacts on Patients
social stigma linked to having disability
sort of like big secret: hard to talk about
leads to backlash, harsh judgement
causes stress for patient
Personal Examples
Laura Hillenbrand
author, Chronic Fatigue Syndrome
Larry Nance Jr.
basketball pro, IBD
Ellie Smith
article author, xoJane, accident