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Data Collection and Ethical Considerations (Primary Data (Interviews (GOOD…
Data Collection and Ethical Considerations
Data Linkage
Demographic & Clinical Data
Not limited to Health Services
It combines information on individuals across a range of agencies
Confidential
Primary Data
Interviews
GOOD
It’s an opportunity to clarify responses and can explore issues in depth
BAD
Time-consuming/Interview Bias
Biological Samples
GOOD
t can provide definite ‘proof’ of exposure and be stored for later tests
BAD
It’s more harm/discomfort for the participant
Questionnaires
GOOD
Everyone gets the same set of questions
BAD
Limited ability to explore further if questions are close-ended
Surveys
GOOD
It reports on health-related states and events
BAD
May only be representative of a particular population at a certain point in time
Measurements/Examinations
GOOD
It’s good evidence if collected prospectively
BAD
Inconsistency between examiners/equipment
Secondary Data
Types of RDC
Hospital/Medical Records
Disease Registries
Data Reports
Surveillance Data
Death Certificates
The Good vs The Bad
GOOD
quick and easy to access
records a very large population
already exists
BAD
not collected for your study
doesn't answer your questions directly
can be incomplete/inaccurate
Ethical Considerations (NHMRC Values)
Respect
:
Recognition of Human Intrinsic Value (abide by values of research merit, justice, integrity and beneficence)
Justice
:
Inclusive & Exclusion Fair
Beneficence
:
Minimisation of Harm/Discomfort
Research Merit & Integrity
:
Uses appropriate Methods
Justifiable