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PARTNERSHIP WORKING, EMPOWERMENT and FAMILY CENTRED CARE (Family Centred…

- - - - Trust
      - What was happening and what is happening
      - Treated as an Adult
      - Knowing everything in relation to the condition or injury
      - Open Honest Communication
      - Giving patients a deeper knowledge of their condition
      - Humanisation
      - Included in own care speaking to both child and parent together
      - Informing the patient about what is happening and what they can expect
    - - Being conscious of boundaries
      - Treating people like individuals regardless of age
      - Share the persons experience
      - Acknowledge more than just a condition- A person
      - Understanding what information is private and what is public
      - Asking about life and goals interests
      - Respect is an open conversation
      - Ensuring private conversations remain private through techniques
    - - Knowing the person behind the patient
      - Being more than just a number
      - Getting involved in something that matters
      - Checking what matters to the patient
      - Ensuring goals are reached pushed to achieve where possible
      - I was signing a form myself even though only parents required
      - Helps patients know they have control over their healthcare
      - Partnership
      - Participation in my life as a patient not just my medical journey
  - - - The Transitional Care Pathway Act 2007 A framework for the development of integrated multi-agency care pathways for young people with life- threatening and life limiting conditions
      - Stepping Up (together for short lives 2015) Updated from 2007 standards, sets out 5 standards which were fundamentally supportive of the previous six minimum standards 1 Preparing for Transition 2 Proactive care planning 3 Parallel care plan in paediatric & adult Services 4 Smooth transition 5 Effective multi agency working and realistic expectations
      - Voices for Change Act 2003 Identified the need for this act from surveying patients that everything stops at 18, everything is a battle. The young person doesn't change the services do, She wasn't meant to be 18. No one knows what to do with her
      - Key Topics Involving young people and their carers in service design delivery and evaluation in relation to transition. Ensuring transition support is developmentally appropriate and is strength-based and focused. Use person-centred approaches.