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Attitudes towards genetic information (Recipients (Existing genetic…
Attitudes towards genetic information
Recipients
Existing genetic information and screening
Important
Influence choice of donor
Less important than non-genetic information
Hope that genetic conditions will be treatable in the future
Would not stop me from having a family
Satisfaction with amount of information
Reassuring
Increased awareness of genetic risk
Helped to start conversation
Future genetic screening
Benefits
The more information the better
Benefit health of future child
Limitations
Information overload
Unsure if want so much information
Concern about ethics of genetic selectiveness
Don't want more investigation than non-donor conceptions
Might stop me wanting a child
More anxiety
Impact on donor numbers
Impact on cost of donor program
Discomfort asking donor to be tested
Donors
Existing genetic information and screening
Overall positive experience
Uncertainty about family history information
Uncertain relevance of genetic screening
Comfortable undergoing genetic testing
Apprehension about genetic results
Greater scrutiny compared to non-donor conception
Ethics of creating a superior child
Future genetic screening
Benefits
Happy for results to go to recipients if it would help them
Limitations
Impact on cost of donor program
Would not wish to know own results
Ethics of genetic selectiveness
Privacy concerns
Importance of environmental factors as well as genetics
Impact of donor wellbeing