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Preliminary Assessment of Caregivers' Goals (Social (To talk with my…
Preliminary Assessment of Caregivers' Goals
Personal / Emotional
To have a life (Carers UK talks about this as THE basic caregiver right) [JF]
To get better at a hobby/interest/sport outside my caring world [ML]
Better play at piano [FG1]
To know more that my (care receiver) is okay even when I'm not there [JF]
To be more relaxed/confident [ML]
More relaxation/lower stress [FG1]
To be able to do other things I need to do for myself (shop for groceries, go to the doctor/dentist/hairdresser/gym) [JF]
To get more help [ML]
To reduce my feelings of guilt [JE]
Feeling less guilty out in the world [FG1]
More time [FG1]
To have more peace-of-mind [ML] [FG1]
To worry less about my (Mom/Dad/sister/husband ... care receiver) [JF]
Physical & Mental Health
Better able to provide increasing physical care demands [FG1]
Simple healthy food [FG1]
Walk more often (once a week) [FG1]
To be able to exercise and eat more healthy [AM]
To cope better with my situation | To feel less angry about my care situation [JE]
To take better care of my health [JE]
To be hurt/be stiff less [ML]
To get more sleep [ML] [JF] [FG1]
More sleep (what is causing less sleep? Emotion, work, stress, time) [FG1]
To overcome more difficult care episodes, and be more mentally strong and resilient in face of adversity while providing care [AM]
Education
To know about products/services that can help me [JE]
To learn ways to interact in meaningful ways with the care receiver [JE]
To complete my education/career related training [JE]
To know more about my (care receiver's) condition [JF]
More efficient coordination between professional health providers [FG1]
To provide more/better care to my (care receiver) [JF]
To make respite easier by creating my own knowledge bank/ "client profile" for my loved one [FG1]
To know what to expect next so I can plan better [JF]
Simplify disease management [FG1]
Simple disease specific nutrition [FG1]
To get better at something technical inside my caring world [ML]
Better at eliciting information [FG1]
To understand the care system/technology/my loved one's disease better [ML]
Know more about palliative care, grief and unknown experiences [FG1]
What to expect next so I can plan better [FG1]
Knowledge bank/awareness of resources as care receivers' needs change [FG1]
Financial
To better anticipate the costs associated with specific episodes of care (e.g. hospitalizations, diagnoses, palliative) [AM]
To be better prepared financially for end-of-life caregiving [AM]
To be able to save for my own retirement [JF]
To have a better understanding of the social and financial supports available for myself and members of my care network [AM]
Social
To talk with my siblings/family members about sharing care responsibilities [JE]
To stay more connected to the care network of my care receiver (when caring from a distance) [AM]
To spend more time with my wife/husband/kids/friends [JF]
To understand better the motivations and goals for other caregivers in my care network (e.g. status updates on their well-being, levels of frustration, successes, etc.) [AM]
To go on vacation [JF]
To have more time with family including the care receiver, where caregiving is not the focus of our interactions [AM]
To get out more (leisure activities, dinner, hockey game/movie...) [JF]
To know more about the day-to-day caregiving activities with my care receiver [AM]
To have more/a bigger range of people in my life [ML]
Better access to support/creating a caregiver network [FG1]
To have a better relationship with my kids/friends/co-workers [ML]
Keep connected with people outside [FG1]
To spend more time outside the house [ML]
Better relationship/keeping connection with my kids/wife/co-workers/mother/family [FG1]
Find a guide/someone or something to help navigate/to be your voice [FG1]
Employment
To know how to talk with my supervisor (or teacher) about my care responsibilities [JE]
To be able to support myself (have/keep my job) [JF]
To balance work/school priorities with family care responsibilities [AM]
To be more present at/engaged in my day job, or other work outside the home [ML]