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HUMAN-CENTRIC CONTROL OF PERSONAL DATA
How can we support individuals to…
HUMAN-CENTRIC CONTROL OF PERSONAL DATA
How can we support individuals to effectively manage who has access to their data and how it is used and shared? :
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Minimisation should not be a standard practice. We don’t know what data will become useful in the future, perhaps because of new insight or new tools (e.g. more powerful computing). It is wasteful to let data go to waste just to keep it to a minimum per se.
We can educate the public to understand how modern statistical methods can benefits from accessing data whose usefulness cannot be proven.
And, if we accept that we don’t know what will be useful in the future, perhaps we should also accept that data is stored that may not be justified.
Focus should be on what is useful, not on “volume”.
Enforcement of control, and punishing violations (fines etc.) cannot capture the value of the data to the user
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Moreover after data is out, there is no way to make it private again. Fines / compensation may not be able to fix the damage.
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PORTABILITY: ACCESS AND RE-USE
How can we enable individuals to obtain and re-use their personal data ? :
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Pivot 2: Portability needs to emerge organically, with real commercial need over the legal requirements (which are avoidable due to technical feasibility clause)
Dark horse concepting, scope narrowing.
In order to better define the problem, we inverted the problem: what’s stopping businesses from embracing data portability
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Insight: The biggest use of data online is advertising (creating new business). If advertising is only as good as the big data behind it, how does it benefit smaller companies pulling in low volumes of data
We need to convince them to move beyond advertising as a business model, and that data portability generates business opportunities in other, non-traditional ways.
Show them that having access to interrelated data/breaking the silos in which data are into allow companies to create better services.
Insight: Data is all over the place, scattered (both internally and externally)
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Insight: Data is an important, critical asset for companies
We need to show them that data does not necessarily need to be hosted inside the company to be useful and worthy
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TRANSPARENCY AND ACCOUNTABILITY
How can we support organisations in the communication of what data they collect and for what purpose? :
Communication between all different stakeholder (see photo), specially companies culture, internal politics and fears.
Already done #legal design = visual communication
- Grading the companies according to the way they make their ToS readable
- Having icons or comic book to explain the ToS
= has not become mainstream… kindda of failed... Because only low budget community driven (Wiki, NGO etc)?
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Complexity: finding balance between the organisation point of view and the individual rights - designing new models and not just “cover it up” with pictures etc.
- Watchdog explaining.
- Gatekeepers providing tools.
- External but also internal to the organisation for design.
= intermediaries that reduce the complexity of it all.
Innovation within organisations = experimenting, R&D.
Scaling the design response according to the business type of organisations and how much data is important regarding the org. core business (from local shop to car rental to Google)
Having the individual as the starter point. He should not be the one doing the work of managing its consent.
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Privacy by design: He can have a description (that can be changed anytime) of what he agrees on (ok to share that kind of data for this purpose but don’t use it for that or that) and the companies will adapt to that description.
Draw the templates for those descriptions.
Then people can personalize it. “I’m ok to share this data with research project, but only the ones that are related to …. ”
Legend
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Approaches, concepts, ideas and best practices
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INDIVIDUAL AS THE POINT 2 OF INTEGRATION
How can we enable individuals to become the “hubs” for their own data?? :
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INDIVIDUAL EMPOWERMENT
How can we help individuals using their data for their own ends? :
Different language used by professionals and individuals, thus leading to potential miscommunication
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