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Themes identified from interviews with healthcare providers (Barriers to…
Themes identified from interviews with healthcare providers
Identified Services
Hospital
Te Ara Hauora
Maori Chaplin
Hospital Palliative Care Team
Specialist Consultants
Hospital Chaplin
Community
Otago Community Hospice
Disconnect :red_flag: differing expectations of service whether for specialist or generalist palliative care
Cancer Society
Disconnect :red_flag: some services consider having palliative role, service usually transitions once palliative
Hospice Southland
Queenstown
Invercargill
Primary care/GP
District Nursing
Home Care Agencies
Access
Private Carer Organisations
Counsellors
Presbyterian Support
Enliven Southland
Child Cancer Society
Age Concern
Carers Society
Needs Assessment
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Barriers to Access
Lack of 24 hour care
Funding
Poor patient education
Taboo surrounding death and dying
Medicalisation of death and dying
Time - unclear prognoses
Limited resourcing
Knowledge of what is available
Assumed knowledge
Poor communication
Between services and patients
Between services
Stigma surrounding hospice
Cultural assumptions
Mental Health Issues
High depression rates among carers
Geographical location
Rural living/between towns
Difficulties surrounding dying at home
Untrained carers
Funding
Medications difficult to manage
Inability to get leave from work for family members
Home environment and equipment use
Family carer stress
Lack of definite time frame
Staff burnout
Social Isolation
Who coordinates care?
GP
Hospice Care Coordinator
Hospital/Specialist
District Nursing
:red_flag:Discrepancies between who thinks is coordinating care in some cases
What was identified as most helpful
District nurses and carers key for keeping palliative patients in own homes
Care coordinators/nurse specialists