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conclusions - care levels (Integrating dialysis into life (HHD (barriers…
conclusions - care levels
personal control
HHD
easy access to support
did not need to be regular but available when required
Self
taking on care
#
issues of control, in relation to flexibility
look at NZ house dialysis provision
organization aspects of care may have a more important role in control
choosing nurse led care was effecting control and choice
Dependent
staff as source of support
access to staff
adhoc nature meant time and engagement not present
#
want to be seen when at the unit therefore conflict with adhoc nature
social viability
HHD
closer to family
dependence on family
emotional burdens more significant than physical
relationships with staff less significant
also had significant effects on roles and responsibilities
doctors more important
information support from other patients not emotional
role of social media
Self care
importance of relationships when learning
relationships with staff may also be less important
must guard against social isolation
Dependent
time away from family
Integrating dialysis into life
HHD
able to dialyze around life
freedom from dietary restrictions
allows more frequent dialysis - relevance for fatigue
need for responsive assistance
didn't have uncertainties related to the deaths and mortality of other patients
feel dialysis is not the centre of their lives
barriers
fear
home medicalized
needling
self
still lacked the flexibility and this is the main advantage of HHD
significant disadvantage of needing to set up and clean up
self-needling
not waiting for staff
less painful
less anxiety
dependent
getting on and off a priority
motivator for self -care
#
relying on others and loss of control
transport
treatment
flexibility important to all