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Focusgroup Osteoarthritis (Disorders (Types of disorder (Mental impacts…

- - - - Ugly hands
        
        Lower self-esteem
      - Fear
        
        Fear of loosing hand functionality
        
        Fear of loosing ability to write
        
        Fear regarding unstoppable progress
      - Disorders raise mental stress
      - Anger on non-functionality of hands
    - - Grasping
      - Reduced fine motoric skills
      - Pinch grip
      - Uncontrolled finger movements
    - - Bumps
      - Swelling
      - Distortion
  - - - Relief during day
      - Worsening in the morning and evening
    - - Disorders at specific fingers or hands
      - Disorder is spreading over time
      - Disorders everywhere
  - - - Weather
      - Coldness
- - - - Problems
        
        Availablility and ready-to-hand (e.g. opening aids)
        
        Usage of tool uncomfortable (e.g. splint, ergonomic device)
        
        Too lazy to use tool (e.g. curd, plasticine, Internet)
        
        Using tool has other negative sideeffects (e.g. ointment, shoes without shoelaces)
        
        Refusal to use a tool (e.g. curd, Smartphone)
        
        Wrong usage (e.g. plasticine)
        
        Tool unkown (e.g. ergonomic devices)
        
        No use for tool yet (e.g. opening aids)
        
        Strange look of a tool (e.g. orthopedic cutlery, splint, opening aid)
      - Effectiveness
        
        Several tools for one problem to ensure at least one works
        
        Varying effectiveness of a tool
        
        Effectiveness varying from person to person
        
        Effectiveness depending on attitude and belief
      - Origin
        
        Study
        
        Usual store
        
        Specialized (orthopedic) stores
        
        Catalog
        
        Pharmacy
    - - Tools with better shape or grip
        
        Pen with better grip
        
        Orthopedic cutlery
      - Clothes
        
        Shoes without shoelaces
        
        Gloves to keep hands warm
        
        Stuff placed in bigger pockets
      - Aids for anointing
        
        Different types of ointment to reduce pain
        
        Curd
        
        Reduces disorders and pain
        
        Easy to apply at home
      - Tools for excercising
        
        Tools or ball for self-massage
        
        Tools and balls for strengthening excercises
        
        Nordic walking sticks to move hands while walking
        
        Plasticine for strengthening excercises
      - Technical tools
        
        Internet
        
        Importance of reliable, qualified information
        
        Used for explaining medical terms
        
        Found information leads to wrong insights or interpretation
        
        Smartphone
        
        Refusing to use smartphone
        
        Afraid of surveillance by using apps
        
        Not my generation, but may be useful for youngers
        
        Ergonomic devices known but not used
        
        Electric writing replaced hand writing
      - Splint for stabilizing fingers or hand
      - Opening aids
        
        Different types with different usage
        
        Reduces pain while opening
        
        Used if opening is not possible by hands
  - - - Exercise
        
        For Hands and fingers
        
        Reduces disorders
        
        Keeping agility of hands
        
        Keeping strength of hands
        
        Special exercises from study
        
        Keeping hand functionality
        
        Sport
        
        Daily sport has positive mental impact
        
        Hands feel good during sport
        
        Pumping hands againgst swelling
        
        Problems
        
        Too lazy or no motivation for exercises
        
        Pain during exercising
        
        Costs time of daily life
        
        Exercises on daily base or as needed
      - Preventative measures important
      - Nutrition
        
        Use of dietary supplement
        
        Fish
        
        Fasting
        
        Omega-3-Fatty acids
        
        Gelatine
        
        Quality/Cost relation
        
        Vitamins
      - Baths
        
        Warm hand baths
        
        Paraffin-baths
        
        Thermal water
      - Knowledge and
        Information
        
        Sharing experience with other patients
        
        Interested in information of scientic results and others experience
        
        Origin
        
        Self-research
        
        Education from health professional
        
        Literature
        
        Problems
        
        Basic message "that there is nothing you can do"
        
        Contradictory and unclear information
        
        No preventive education and elucidation
      - Self-massage
      - Mental attitude
        
        Suppression of disorders
        
        Accepting the disease
        
        Ambition and consequence for self-care
        
        Bear disorders
      - Alternatives
        
        different hand moves
        
        using second hand
        
        doing activities more careful
        
        different hand positioning
      - Resting
        
        More breaks while working
        
        Separating work in small steps
      - Warmth
      - Holiday in the south
    - - Health professionals
        
        Visiting a general doctor
        
        Searching for hand specialists
        
        Physiotherapist, Rheumatologist
      - Medical treatment
        (medication, injections)
        
        Recommendations from doctors and relatives
        
        Medication needed for painless life
        
        Medication helps against disorders and pain
        
        Avoiding medication
        
        Problems
        
        Difficulties for regular intake
        
        Contradictory information and opinions
        
        Costs
        
        Side effects
        
        No effect
      - Massage
        
        High costs for good quality
        
        Few good, qualitative offers
      - Attending scientific study
        
        Health education regarding OA recieved
      - Surgery
        
        No proper methods for finger joints available yet
        
        Different opinions on benefits
        
        Plastic joints have limited lifespan
        
        Possiblity to remove bumps
      - Special therapies
        
        Good offers far away
        
        Physical therapy
        
        Cold chamber therapy
      - Regimen or
        rehabilitation
        
        Learned exercises aren't continued at home
      - Alternative treatment
        
        TCM, herbs
        
        Less scientific evidence or reports on success
        
        Expensive
    - - Help from others is not possible for everything
      - Awkward feeling to ask someone else
      - If something can't be done alone
      - Help from relatives not always given
      - Asking for help
      - Hand over work to someone else
- - - - Kitchen work
        
        Dropping plates
        
        Cutting with a knife
        
        Cooking is exhausting
      - Screwing
        
        Less strength for opening bottels
        
        Pain while opening
      - Cold water hurts
      - Pain while cleaning windows
      - Gardenwork
    - - Tieing shoes
      - Troubles with buttons and zip
      - Gettings things out of pocket
      - Fitting into gloves
    - - Using small scissors
      - Using small screws
      - Needlework
    - - Usage of keyboard
      - Usage of slim pen
    - - Prepare medication
      - Lifting flat items
      - Handling coins