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Location of care and death (Appropriate care and death (More people are…
Location of care and death
Psychological and Emotional Support
The option to die at home is a social and emotional decision of patients and relatives but could also be a practical, cost saving move on NHS front.
Patient care above costing issues is obviously an ethical quandary
LOCATION IS RECOGNISED AS AN IMPORTANT NEED FOR PATIENTS AND THEIR RELATIVES
the psychological benefits of being cared for closer/within the home environment as patient/carers can be engaged more in these familiar environments; there is no mention of caring for patients within familiar environments for any other reasons than to improve rehabilitation outcomes
Home and Comfort
Most people wish to die at home but only just over half do
Location of death is a choice that often goes unmet
; often due to practical reasons such as lack of community support
Location is often a priority for patients; to feel comfortable at the end of life. There are varying degrees of homeliness;
description of home on parallel with being comfortable
which is achievable through efficient, compassionate and timely palliative care from specialists who know what they are doing and care for the patient.
don't actually need to 'go home' to feel at home in an environment
LOCATION REQUIRES CAREFUL COMMUNICATION WITH THE PATIENT AND THEIR RELATIVES TO IDENTIFY WISHES AND DETERMINE WHAT IS MANAGEABLE
LOCATION IS A NEED AND RIGHT OF THOSE WHO ARE RECEIVING PALLIATIVE CARE
Appropriate care and death
More people are aging and getting degenerative conditions; palliative care is used to eleviate the burden of these conditions on their life remaining
PALLIATIVE AND END OF LIFE CARE CAN BE NEEDED QUICKLY WITH LITTLE TIME TO PLAN; NEED TO RECOGNISE THAT IT CAN BE PROVIDED ANYWHERE AND SHOULD BE OFFERED WITHIN A VARIETY OF SETTINGS
The is often insufficient community support to ensure patients discharged home/to care homes do not feel abandoned by hospital speicalists
NEED FOR COMMUNICATION OF DECISION MAKING and the NEED FOR ADEQUATE SUPPORT TO ENSURE LOCATION IS ACHIEVABLE
Patients should not have to re-divulge information; the care teams/specialists should know their patient (at least what has happened/treatments/wishes); people with storke should be involved in decision making and no bizarre terminology. Efficient communication throughtout (layman chats)
Collaboration and easy transitions/transfers between care servces is imperative to ensuring no needs are unmet but also there is no loss of quality of service
Patients should be seen by specialists no matter which setting; those not admitted to hospital should still receive the highest standard of care. No mention of care as terminally ill patient
Medical Support
Hospital is the first point of contact; those who receive palliative and EOL care within hospital are not necessarily better off; studies have identified those cared for in hospital receive unnecessary treatment which can worsen their state, physically and emotionally
LOCATION IS CLOSELY LINKED WITH SYMPTOM MANAGEMENT BEING APPROPRIATE AND NOT TO THE DETRIMENT OF QUALITY OF LIFE